Saturday, September 27, 2008

Kaden

Almost 3 in this picture and oh so adorable.


Well i have been hesitant to write anything about Kaden seeing this new world renowned doctor. But we did go and learned alot about Kaden and how is body and mind works a little better. We are already decreasing his 3 medications. This new doctor is having him seen by the O.T. Department at Children's Mercy for a complete evaluation as he thinks Kaden has been somewhat misdiagnosed and that he has Sensory Integration Disorder. Here is the definition for anyone that is not familiar with it-




Sensory integration disorder or dysfunction (SID) is a neurological disorder that results from the brain's inability to integrate certain information received from the body's five basic sensory systems. These sensory systems are responsible for detecting sights, sounds, smell, tastes, temperatures, pain, and the position and movements of the body. The brain then forms a combined picture of this information in order for the body to make sense of its surroundings and react to them appropriately. The ongoing relationship between behavior and brain functioning is called sensory integration (SI).




We have filled out the appropriate papers and are waiting to have the appointment scheduled sometime soon. So hopefully we will have some answers sometime soon. He has been going to a new place for Behavior Therapy for the past month and while up till now it has mainly been about collecting background information so there has been no change in him. But i am very hopeful as this place has nothing but rave reviews. While most everyone knows that we started noticing things with Kaden around 1 1/2 but were hoping it was just stuff that he would outgrow when he was no longer a toddler. Unfortunately that did not happen and things progressively got worse with him. He has his moments when he is fine and seems to be doing good but that can all change very quickly with him. Everyday i pray for the wisdom and strength to help him with whatever is going on in him.




It is so hard as i was very fearful to have another child especially a boy knowing the troubles that Kaden has had. But God had other plans for us and decided to bless us with Skyler a boy even though we thought he was a girl. Skyler is fast approaching the age Kaden was when we started seeing things different in him. I have been so stressed with Kaden and knowing that it could happen again. But i can ease the stress about Skyler as most of you know he really is the complete opposite of his big brother. I have also been reassured by Kaden's doctor that it is a very very slim possibility that Skyler too would have problems and with him not showing any of the signs that Kaden did we really have nothing to worry about.




I know i usually update about much happier things but i really needed to vent a little and this seemed like the perfect place to do it. So thanks for listening and i will update more about this when we know a little more.




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