Saturday, September 27, 2008

Kaden

Almost 3 in this picture and oh so adorable.


Well i have been hesitant to write anything about Kaden seeing this new world renowned doctor. But we did go and learned alot about Kaden and how is body and mind works a little better. We are already decreasing his 3 medications. This new doctor is having him seen by the O.T. Department at Children's Mercy for a complete evaluation as he thinks Kaden has been somewhat misdiagnosed and that he has Sensory Integration Disorder. Here is the definition for anyone that is not familiar with it-




Sensory integration disorder or dysfunction (SID) is a neurological disorder that results from the brain's inability to integrate certain information received from the body's five basic sensory systems. These sensory systems are responsible for detecting sights, sounds, smell, tastes, temperatures, pain, and the position and movements of the body. The brain then forms a combined picture of this information in order for the body to make sense of its surroundings and react to them appropriately. The ongoing relationship between behavior and brain functioning is called sensory integration (SI).




We have filled out the appropriate papers and are waiting to have the appointment scheduled sometime soon. So hopefully we will have some answers sometime soon. He has been going to a new place for Behavior Therapy for the past month and while up till now it has mainly been about collecting background information so there has been no change in him. But i am very hopeful as this place has nothing but rave reviews. While most everyone knows that we started noticing things with Kaden around 1 1/2 but were hoping it was just stuff that he would outgrow when he was no longer a toddler. Unfortunately that did not happen and things progressively got worse with him. He has his moments when he is fine and seems to be doing good but that can all change very quickly with him. Everyday i pray for the wisdom and strength to help him with whatever is going on in him.




It is so hard as i was very fearful to have another child especially a boy knowing the troubles that Kaden has had. But God had other plans for us and decided to bless us with Skyler a boy even though we thought he was a girl. Skyler is fast approaching the age Kaden was when we started seeing things different in him. I have been so stressed with Kaden and knowing that it could happen again. But i can ease the stress about Skyler as most of you know he really is the complete opposite of his big brother. I have also been reassured by Kaden's doctor that it is a very very slim possibility that Skyler too would have problems and with him not showing any of the signs that Kaden did we really have nothing to worry about.




I know i usually update about much happier things but i really needed to vent a little and this seemed like the perfect place to do it. So thanks for listening and i will update more about this when we know a little more.




Wednesday, September 24, 2008

Kaden's Picture Day

Look at this handsome Little Man



Today is picture day at school and of course it is pouring down rain.

Monday, September 15, 2008

I'm Slacking

Skyler's Party
Hey i see you mom



I know i am slacking but Skyler and i have been sick. Skyler is doing better but still not feeling all that great. His party went ok and he had some fun. He is talking alot and saying new words all the time. He is still not walking but you can tell he is so close.





Kaden is doing a little better at school. And the best news of all is it looks as if he has outgrown his food allergies. He is allergic to dust,pollen,grass,mold,cockroaches and dogs. Maybe something else too i can not remember right now.

Wednesday, September 3, 2008

Happy 1st Birthday Skyler Joseph!




Look what i got for my birthday
Mommy let me have a whole cupcake myself this time!
Skyler is doing good he had to get three shots today and the doctor wants to keep on formula for awhile longer. He will go to the Next Step Soy formula after we run out of Nutramigen and then he will go to Next Step Enfamil regular. If he does ok on that we will try him on regular milk, if not he will be put on soy milk. He is about 19 pounds and 30 1/2 inches long.

Thursday, August 28, 2008

My Wallet was Stolen today

Kaden a few weeks ago at the carnival.
Skyler crashed out and his pants are rolled three times and still won't stay up.
Today was a bad today. While shopping at Children's Orchard to get the boys some clothes my wallet was stolen from the stroller where Skyler was sitting. The two women got everything including all my cash, used my debit and credit cards and has my id and everything. We found out who did it and it was somebody that was there selling stuff to Children's Orchard and had talked to me acting like they were trying to help me find it, when all along her and her friend had taken it. We have camera footage from where they used it and the police are looking into it.

Tuesday, August 26, 2008

Food Allergies

Skyler's blood draw.
I did good.
Kaden's blood draw.
He had a rough day.
The boy's had appointments with the Allergist yesterday. Skyler also has the food Allergies like Kaden. The main one is Egg he had a skin test done on his back so we knew right away as he starting to swell up. They both had blood drawn so we are waiting on the test results for that. They were also testing to see if Kaden's immune system was working properly to see if that is what is causing him to be sick all the time. They both have cold induced Asthma.


Kaden is not doing well in Kindergarten. I went up and talked to the teacher yesterday morning and she said he crys alot and that he does not want to do anything. He won't color, write, play with the other kids and he sits during recess. His counselor called me today and we are working with her to try and help him. He crys every morning begging me not to send him to school. Nobody understands what is going on with him as he went to 2 years of preschool and went to Kindergarten Summer School and was fine.


Skyler has a new tooth on the bottom and another one starting. That will give him 4 on top and 4 on bottom once they come through. He is starting to talk more and can say a few more words. He is very smart and even cleans up his toys by himself. He is still against using a sippy cup but with take a sip here and there. He is not walking and refuses to walk while hold your hand as well. I have a feeling he is just going to take off and start walking one day and surprise everyone. He will be turning 1 next Wednesday Sept.3.


Ok Kaden's bus will be here soon so i have to go and see how the rest of his day went.

Wednesday, August 20, 2008

Kaden's First Day of Kindergarten

Posing before school
Big Kindergartner
Just like Kaden always looking at something else.
I love cantaloupe and watermelon.
I love this stuff. I also had cucumbers and broccoli too.
Kaden woke up Monday morning not feeling so hot but he was determined to go to school on Tuesday for the first day. He woke up still not feeling well but i gave him some motrin and he went to school. He loved it and did end up going to the nurse but not until 2:30 but they ended up sending him back to class. He gets out at 3:45 so he made it just fine. He went this morning feeling a little better so i hope he has a good day.


Skyler has at least one tooth coming in on the bottom and has caught Kaden's cold. He is pretty miserable and did not sleep well last night as he could not breath through his nose much. Today he just has the snot going everywhere. If he gets any worse i will take him into the doctor as he is at risk since he had the RSV so bad after he was born. Both boys will be going on Monday to see the allergist so hopefully we will find out what each one is allergic to.